Path to Diagnosis of Paroxysmal Nocturnal Hemoglobinuria: The Results of an Exploratory Study Conducted by the Aplastic Anemia and MDS International Foundation and the National Organization for Rare Disorders Utilizing an Internet-Based Survey
Paroxysmal Nocturnal Hemoglobinuria has an adverse impact on patients’morbidity and mortality, however, little research has been performed to understand their experiences from onset Download PDF
Rachel Mitchell1, Ellen Salkeld2, Stephanie Chisolm2, Melanie Clark1 and Jamile M Shammo1*